Websites where you can find more information.
Also section with diagnosis abnormalties
Information sources
https://me-pedia.org/wiki/Welcome_to_MEpedia Basically wikipedia for everything ME/CFS
Healthrising.org Lots of information explained new treatment options and interviews with researchers etc in simple language
https://forums.phoenixrising.me/ big me/cfs forum
www.s4me.info/ another forum more focused on science
mecfsroadmap.altervista.org/Roadmap great resources also info on pharmacies diagnostic tests etc
helpforlongcovid.com/ focused on finding treatments and doctors
Reddit cfshttps://www.reddit.com/r/cfs/wiki/index/ (the mecfs subreddit has been hyjacked by psychosomatic followers)
Reddit lc https://www.reddit.com/r/covidlonghaulers/
https://longcovidweekly.substack.com/ (Once a week, a letter in your mailbox with updates)
Summary on all things long covid by brandon (RIP)
More specific
Pacing(with HRM)https://holisticcfs.wordpress.com/hrm-master-page/
How infection can damage the spine
Social media wise ive noticed that the best information is usually from twitter then bluesky (but it isnt quite active) reddit and then facebook (from specific groups, it really depends on the group) and then tiktok (with tiktok youre just really depended on the algorithm)
To find the community on twitter try #pwme #pwlc
No abnormalties in blood tests?? think again
